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You would receive a weekly Update like this if you were members! See how good it is!?!?
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Volume XXI, Issue 7
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“THE HOSPICE UPDATE”
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February 13, 2017
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Download Printable Version of this Newsletter CALENDAR
- 02/24-26/2017, 35th Annual Conference, Omni Houston Hotel Register
- 03/09/2017, Webinar GIP Compliance - Free for Members
- 03/24/2017 Board of Director’s Meeting, Austin, TX 10 am-3 pm
- 06/16/2017 Board of Director’s Meeting, Austin, TX 10 am-3 pm
- 02/24-26/2018, 36th Annual Conference, Omni San Antonio Hotel at the Colonnade
- 02/23-25/2019, 37th Annual Conference, Omni Mandalay Hotel, Las Colinas
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MEETING SUMMARY JANUARY 30 THROUGH FEBRUARY 10, 2017 Aging Texas Well Advisory Committee met on February 1, 2017. The Health and Human Services Commission (HHSC) presented on Veteran Services in Texas. Medicaid Managed Care Advisory Committee met on February 8, 2017. The committee heard from HHSC staff on transformation, network adequacy, Center for Medicare Medicaid Services rule changes and value based quality improvement. The Palliative Care Interdisciplinary Advisory Committee met on February 9, 2017. Senate Bill 512 and House Bill 995- relating to the form and revocations of medical powers of attorney and the Sunset Commission Report on the Texas State Board of Pharmacy recommendation that physicians and physician assistants research the prescription drug monitoring program when opioids are prescribed. “OBESITY IS A STRONG PREDICTOR OF NON-HOSPICE USE AT THE END OF LIFE The heavier individuals are, the less likely they are to experience hospice care and have the chance to die at home. Researchers at the University of Michigan (UM) are drawing this conclusion after an in-depth analysis of medical records from more than 5,600 seniors who took part in a long-term study. This research points to the fact that many obese seniors are experiencing worse health outcomes than do their peers, and this disparity comes with both a human and a financial cost. UM researchers examined how an individual’s body mass index (BMI) correlated with the end-of-life care that they received. Not only did they find a lower usage of hospice among those with higher BMI, but they also found that those obese seniors who did receive hospice care spent on average fewer days in hospice care than those with a lower BMI. About 60% of those studied died at home, but this proportion shrank as BMI rose. Instead, heavier seniors faced a higher likelihood of death in a hospital setting. They also tended to receive care in their last six months of life that was costlier than average. This study did not look at the reason that obesity is correlated with lower use of hospice care. However, senior author Jennifer Griggs, MD, MPH, professor of public health at the UM Medical School, suggests some possible answers. “For hospice teams, as for hospital and home-health teams, it can require more staff to take care of people who are obese, but Medicare hospice reimbursement is capped no matter what a person’s BMI,” she says. “Also, obesity may mask the signposts and changes that physicians might use to determine when it is time for a person to enter hospice.” Griggs notes that the marked, unhealthy weight loss typically associated with active dying may be easier to notice on individuals with a lower BMI. Previous studies “have shown a general bias against people with obesity among healthcare professionals, especially physicians.” This bias may play a role in the differing health outcomes experienced by obese individuals. Significantly, Griggs points out that obesity is not even mentioned as a barrier to high-quality care in “Dying in America,” a landmark Institute of Medicine report from 2014. These latest findings point to the need for a reevaluation of how individuals with more severe levels of obesity are cared for. “These patients voices, and those of their caregivers, need to be heard,” says John Harris, MD, who led the study during a fellowship at UM and is now an assistant professor at the University of Pittsburgh School of Medicine. “They may need extra help. They deserve the best healthcare and better health outcomes.” Harris says the study’s findings point to an issue that is only going to become more urgent as the increasingly overweight and obese American public ages. “Many policies focus on preventing or reducing obesity in the US, but we will also need policies to encourage the provision of high-quality care for people with obesity,” he says. “More attention should be paid to payment structures that recognize the challenges involved with healthcare for men and women with obesity.” (Health Day, 2/6, consumer.healthday.com/vitamins-and-nutrition-information-27/obesity-health-news-505/terminally-ill-obese-people-less-likely-to-get-hospice-care-719392.html; Medpage Today, 2/6, www.medpagetoday.com/PrimaryCare/Obesity/62932?xid=nl_mpt_DHE_2017-02-07; Science Daily, 2/7, www.sciencedaily.com/releases/2017/02/170207110908.htm) HUMOR LOWERS STRESS AT END OF LIFE For some families, the dying process can be an occasion for laughter as well as tears. “The process of dying comes with less stress when it’s something of a laughing matter,” writes Bruce Horovitz for Kaiser Health News. Dying individuals and their families can benefit from “a willingness to occasionally make light of the peculiarities – if not absurdities – that often go hand-in-hand with end-of-life situations.” For an aging generation of Boomers who grew up with a steady background of laugh tracks on TV, humor might just be what the doctor ordered. “Laughter is the best medicine,” says Mary Kay Morrison, president for the Association of Applied and Therapeutic Humor, “unless you have diarrhea.” Humor can be particularly important for people nearing the end of life. “While death cannot be cured, your frame of mind is something you can change.” Morrison’s group has a set of loose guidelines around the use of humor with dying people. Above all, it’s crucial that you make sure you know the dying person well enough before you use humor with them. The National Cancer Institute encourages patients to build humor into their daily lives. This can happen in small ways, like buying a funny desk calendar or watching comics and TV shows. “The right humor at the right time, she says, can infuse the brain with pleasurable hits of the stimulant Dopamine, decrease muscle tension and anxiety in the body’s nervous system, and momentarily diminish feelings of anger or sadness.” Hospice workers typically hear more morbid jokes than almost anyone. Allen Klein recalls volunteering at a hospice in the San Francisco Bay area, when an elderly woman told him one of her end-of-life wishes: She wanted to be cremated, and have her ashes mixed into paint and used to paint her husband’s bedroom. “Why would you want that?” Klein asked. “So I can look down at my husband and see if there’s any hanky-panky going on.” (Kaiser Health News, 2/6, khn.org/news/laughing-until-you-die/) HOSPICE AND END-OF-LIFE NOTES
- A new $43 million residential hospice center in Dallas, the T. Boone Pickens Hospice and Palliative Care Center, aims to “feel like home.” “The facility includes a total of 36 spacious rooms that have en suite bathrooms, fold-out beds for guests and an office space for caregivers. A patio in each room faces out toward a 2.5-acre on-site lake, where winding pathways and lounge spaces ensure visitors won’t be confined to a room.” The link below leads to the article and a video about the center, which opens on 2/15. (Dallas News, 2/7, www.dallasnews.com/business/health-care/2017/02/07/dallas-boone-pickens-hospice-care-center-feel-like-home)
- Seriously ill undocumented immigrants face unique health care challenges in the United States – including a lack of access to hospice care. “‘Although hospice services have previously been shown to improve costs and quality of care at the end of life, undocumented immigrants may have difficulty accessing hospice, particularly in areas served predominately by smaller, for-profit hospices,’ said Dr. Nathan A. Gray from Duke University in Durham, North Carolina, who worked on the survey.” (JAMA Network, 2/6, http://jamanetwork.com/journals/jamainternalmedicine/article-abstract/2601077; Medscape, 2/8, www.medscape.com/viewarticle/875482)
- When physicians determine that CPR will not be helpful, but their surrogate insists that doctors perform CPR, what should happen? “Although there is state-to-state variability and a considerable judicial gray area about the conditions and mechanisms for refusals to perform CPR, medical teams typically follow a set of clearly defined procedures for these decisions. The procedures are based on the principle of nonmaleficence and typically include consultation with hospital ethics committees, reflecting the guidelines of relevant professional associations.” A Hastings Center Report examines this difficult issue. (Hastings Center Report, 1/11, onlinelibrary.wiley.com/doi/10.1002/hast.664/full)
- Just as doctors begin to bill for advance care planning conversations, the specter of “death panels” reemerges on the political scene. “Rep. Steve King, R-Iowa, introduced a bill last month, the Protecting Life Until Natural Death Act, which would revoke Medicare reimbursement for the sessions, which he called ‘yet another life-devaluing policy.’” King’s proposed legislation “underscores deep feelings among conservatives who have long opposed such counseling and may seek to remove it from Medicare should Republicans attempt to make other changes to the entitlement program.” (USA Today, 2/9, www.usatoday.com/story/news/2017/02/09/kaiser-docs-bill-medicare-end--life-advice-death-panel-fears-reemerge/97715784/)
- A perspective piece published in the New England Journal of Medicine asks whether Medicare’s payment system is equitable in the case of social risk factors. “A growing body of research indicates that social risk factors, including low socioeconomic position (as indicated, for example, by income or educational level), minority race or ethnic background, lower degree of acculturation, minority sexual orientation or gender identity, limited social relationships, and living alone or in a deprived neighborhood influence health outcomes. These findings are a concern for health care providers and policymakers because Medicare beneficiaries with such social risk factors are often concentrated among a subset of providers, particularly in inner-city or rural communities, and in some Medicare Advantage plans.” (NEJM, 2/9, www.nejm.org/doi/full/10.1056/NEJMp1700081)
- Medical students need training, including how to perform highly invasive but potentially life-saving procedures. Should future doctors be allowed to practice on patients who have little chance of recovery? Dr. Tom Fadial considers the ethics of procedures on the “nearly dead.” (KevinMD, 2/2, www.kevinmd.com/blog/2017/02/ethics-procedures-nearly-dead.html)
- “As a leading assisted living and nursing community in Gloucester County, United Methodist Communities at Pitman now offers another supportive option to people who cannot or prefer neither to receive hospice at home nor in the hospital. The newly-established Bridges at Pitman assists people to live out their last days with dignity and comfort.” (NJ.com, 2/9, www.nj.com/south-jersey-towns/index.ssf/2017/02/bridges_comes_to_pitman_umcs_t.html)
- Men face unique challenges in resolving grief, thanks to our society’s expectations around masculinity. “Our society expects men to avoid expressing feelings, to endure stress without giving up and to be able to bear pain. We do not expect to see men openly cry, to express loneliness, sadness or depression or to demonstrate other emotions. … Hospice of Michigan understands men’s unique needs and offers grief support to help them express and find healthy ways to deal with their feelings.” (Alpena News, 2/4, www.thealpenanews.com/opinion/editorials-and-columns/2017/02/men-face-unique-challenges-in-resolving-grief/)
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NPR shares a two-part story that investigates practices of funeral home pricing. “Funeral homes often aren’t forthcoming about how much things cost, or embed the information in elaborate package deals that can drive up the price of saying goodbye to loved ones,” says the report. NPR’s reporters say that they had a difficult time finding prices, and they say, “Federal regulators routinely find the homes violating a law that requires price disclosures.” When his father died, Ed Howard tried to learn funeral costs. “‘It took me as a longtime lawyer and a professional consumer advocate literally an eight-hour day just to get a solid list of what funeral services were offered by nearby funeral establishments and how much they cost. Eight hours.’"
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An article in Healio offers an in-depth report on the work of hematologists and oncologists and their tasks in deciding whether to offer curative, aggressive care to their patients. The authors explore the difficulties of these decisions, the timing of end-of-life discussions, the provision of palliative care, and the challenges of honoring patient wishes. The choice of hospice, over hospital care, is especially challenging. “The fact that many hospice programs do not accept patients undergoing palliative chemotherapy, radiation or blood transfusions makes it difficult for patients with hematologic malignancies to spend their final days in the comfort of their homes,” says the article. (Healio, 2/10, http://www.healio.com/hematology-oncology/leukemia/news/print/hemonc-today/%7B3b604290-1e71-411b-bd64-b9bce9f96a2e%7D/hemoncs-toe-line-in-the-sand-between-quest-for-cure-overly-aggressive-end-of-life-care)
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Coherent Marketing, a market research and consulting firm, published a release on hospice futures. Citing growing numbers of aging Americans, hospices continue to grow. The report, titled “Hospice & Palliative Care Centers Market - Trends, Outlook, and Opportunity Analysis, 2016-2024,” is available for review at the link below. (Open PR, 2/13, http://www.openpr.com/news/434229/Hospice-Palliative-Care-Centers-Market-Trends-Outlook-and-Opportunity-Analysis-2016-2024.html)
PALLIATIVE CARE
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In a CNN debate on healthcare, nationally aired on 2/7, Pallimed says Sr. Ted Cruz “mischaracterized” palliative care. During the debate, Cruz said, “If we cut [costs] -- you know, you look at the elderly in much of Europe. The elderly here, when the elderly face life-threatening diseases, they’re often treated in the intensive care unit. In Europe, they’re often put in palliative care, essentially doped up with some drugs, and said, ‘Well, now is your time to go.’” This statement has gotten a lot of attention in the palliative medicine community, and there is concern of how to deal with such a misconception. (Pallimed Facebook, 2/8, https://www.facebook.com/Pallimed/photos/a.366421277312.158066.66207182312/10155209398862313/?type=3&theater)
- What is the role of palliative care when a family knows that their unborn child is not going to survive? “Prenatal palliative care is a growing field and an important supportive care measure that can help grieving parents and families who do not want to or cannot interrupt their pregnancy. More studies should be carried out, specifically concerning long-term impact of prenatal palliative care. Guidelines and training of health professionals must be developed so that more families can benefit from this type of care.” (JPM, 1/31, online.liebertpub.com/doi/abs/10.1089/jpm.2016.0430)
- The Mayo Clinic provides a comprehensive look at palliative care and hospice. “This article defines palliative care, describes how it differs from hospice, debunks some common myths associated with hospice and palliative care, and offers suggestions on how primary care providers can integrate palliative care into their practice.” (Mayo Clinic Proceedings, 2/2017, www.mayoclinicproceedings.org/article/S0025-6196(16)30763-7/fulltext)
- What is the role of chaplains in providing palliative care? A study published in the Journal of Palliative Medicine “provides the first description of chaplains working in PC across the United States.” According to the study, chaplains see, on average, 5.2 patients per day. About half participate in PC rounds. Key responsibilities include relationship building, providing care at the time of death, and addressing spiritual issues. (JPM, 2/1, online.liebertpub.com/doi/abs/10.1089/jpm.2016.0308)
OTHER NOTES
- Tom Price has been confirmed as Health Secretary under the Trump administration. “By a vote of 52 to 47, the Senate confirmed Mr. Price (R-GA) after a debate that focused as much on his ethics and investments as on his views on health policy. Democrats denounced his desire to rein in the growth of Medicare and Medicaid by making fundamental changes to the programs, which insure more than 100 million Americans.” (New York Times, 2/10, www.nytimes.com/2017/02/10/us/politics/tom-price-health-and-human-services.html)
- Atul Gawande explains why repealing Obamacare would be a huge setback for science. Gawande and researches are “voicing concerns that if we turn back to the pre-ACA days, people might be stingy with their health data out of fear of discrimination by insurance companies. And this comes at a time when scientists really need this information to advance our understanding of disease.” (Vox, 2/9, www.vox.com/science-and-health/2017/2/9/14553968/today-in-obamacare-atul-gawande-repeal-science)
- A bill allowing doctor’s aid in dying is advancing through the New Mexico legislature. “A committee of the House of Representatives voted along party lines to advance a bill that would allow medical professionals to assist terminally ill patients in ending their own lives. The 4-3 vote came only months after the New Mexico Supreme Court’s unanimous decision in the case of a cancer patient who wanted the option to end her own life with the help of a doctor. The state’s highest court decided New Mexico law does not expressly provide patients the right to medical assistance in dying, and suggested the Legislature should clarify the issue.” (Los Alamos Monitor, 2/6, www.lamonitor.com/content/2017-state-legislature-house-committee-advances-bill-allowing-doctor%E2%80%99s-aid-dying)
- Arther L. Caplan, MD, interviewed Howard A. Grossman, MD, on the subject of physician-assisted dying. Grossman has been active in seeking to establish a right to physician-assisted suicide on the national level. “I do not believe that [physician-assisted dying] violates the oath to do no harm. I believe we do harm to people when we force them to go through the dying process because somehow we think it is a beautiful thing. I believe it is the individual’s choice.” (Medscape, 2/8, www.medscape.com/viewarticle/874168)
- How will we solve the growing caregiver crisis? “We are facing an extraordinary demographic shift that will create new challenges for our society and demand new policy solutions. Each day, 10,000 boomers turn 65 and over the next 30 years, the population of older adults will nearly double — growing from 48 million to 88 million, with the largest percentage increase among those 85 and older. This shift will profoundly impact families all across America.” (Next Avenue, 2/7, www.nextavenue.org/finding-solutions-growing-caregiver-crisis/)
ADDITIONAL INFORMATION ON BOARD CANDIDATES In the last issue of the “UPDATE” the information was provided on each candidate for the Board of Directors. Each candidate was given the opportunity to provide more information. Tommie Farrell, MD FAAHPM HMDC I have been involved with hospice since 2004 when I started working part-time at Hospice of Lubbock as an associate medical director. I became board certified in Hospice and Palliative Medicine prior to the start of the ABIM board. I then recertified the second year the ABIM board was offered. I was the first full-time medical director in the city of Lubbock when I started work with VistaCare Hospice in 2007. I later went to part-time hospice work to start a palliative care program at University Medical Center and also start the Fellowship Program for Hospice and Palliative Medicine at Texas Tech University Health Science Center. I now live in Abilene Texas and am a medical director at Hendrick Hospice, the only non-profit hospice in Abilene. I have worked on volunteer projects nationally including working 7 years in the PC-FACS publication for AAHPM and now as the Exam Chair for the Hospice Medical Directory Certification Board. What I think I bring to any organization includes:
- Years of love and dedication to end-of-life care with stories of over 1600 patients and families for whom I have cared and been in their homes.
- Work in both for-profit and non-profit, education based and community based programs. I feel comfortable discussing all these environments and have helped build bridges in a field that needs this more than the divisions that sometimes arise in end-of-life care.
- A passion for education and raising the level of evidence-based practice we follow in hospice care and care provided by physicians in hospice settings.
Hospice News Network is published 45-47 times a year. Copyright, 2017. All rights reserved to HNN subscribers, who may distribute HNN, in whole or part, to provider members of the subscribers’ state organizations. If readers need further information, they should consult the original source. HNN exists to provide summaries of local, state and national news coverage of issues that are of interest to hospice leaders. HNN disclaims all liability for validity of the information. The information in HNN is compiled from numerous sources and people who access information from HNN should also research original sources. Original sources must always be included in distribution to others. The information in HNN is not exhaustive and HNN makes no warranty as to the reliability, accuracy, timeliness, usefulness or completeness of the information. HNN does not and cannot research the communications and materials shared and is not responsible for the content. If any reader feels that the original source is not accurate, HNN welcomes letters to the editor that may be shared with HNN readers. The views and opinions expressed by HNN articles and notes are not intended to and do not necessarily reflect views and opinions of HNN, the editor, or contributors. Only subscribing state hospice organizations have rights to distribute HNN and all subscribers understand and agree to the terms stated here.
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